Interview: Writing a Book with a Disabled Character
Introducing readers to spinal muscular atrophy and sharing an authentic disability experience.
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Aug 24, 2022
Gaming with a Disability
Setting up my Xbox Adaptive Controller and playing video games with a disability.
Aug 9, 2022
Shopping for Clothes with a Disability
The challenges of buying pants while in a wheelchair.
Jul 20, 2022
Finding a Disability Friendly Hobby
My search to keep me busy with an accessible hobby, like I don't have enough going on.
Jul 4, 2022
Accessible Summer Activities for Kids with SMA
List of summer activities for wheelchair users and people with disabilities.
Jun 26, 2022
What to Bring to the Hospital
What medical equipment and medication you should bring when going to the hospital.
Jun 20, 2022
Side Effects from Stopping Evrysdi
My experience after five months of being off of Evrysdi (Risdiplam), a medication for people with SMA.
Jun 8, 2022
That One Time in Vegas
Planning ahead to go on a trip with a disability.
May 23, 2022
I Stopped Taking Evrysdi
Struggling to get insurance approval for Evrysdi and being forced to stop a meditation that treats SMA.
May 2, 2022
Successful Intubation and Anesthesia
Challenges with intubation and respiratory issues because of SMA.
Apr 20, 2022
Early Education Obstacles
The barriers I faced in school due to SMA and how I fought to become an independent student with a disability.
Mar 30, 2022
When Your Equipment Breaks
A story about how I got left dangling over the toilet and my dad almost having a heart attack. We can laugh about it now.
Mar 21, 2022
Having Adult Braces
Dental problems due to spinal muscular atrophy and why you should get adult braces
Mar 9, 2022
Transitioning to Adult Care
Recommendations for finding adult doctors when aging out of pediatric care.
Mar 4, 2022
Removing Wisdom Teeth While Dealing with Respiratory Issues
Recovering from wisdom teeth surgery with SMA.
Feb 24, 2022
The Misery of Accessible House Hunting
The disabled community is forgotten when it comes to equality and universal design.
Feb 18, 2022
Stop Surviving and Start Living
Reflecting on my worsening progression of SMA and how I used to feel.
Jan 26, 2022
Let’s Make Flying More Accessible
According to a report by the Federal Aviation Administration, airlines mishandled more than 10,000 wheelchairs and scooters in 2019.
Jan 14, 2022
Succeeding as a Disabled College Student
There were two major items on my college checklist: a wheelchair-accessible campus and an amazing football team.
Dec 14, 2021
Hiding Medical Equipment
Creative ways to organize medical equipment.
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